Opening Up

Demi Schweers now makes a living by sharing her daily experiences on TikTok.

I first noticed something was off in the summer of 2020.

It was July, and I was one month away from two major milestones moving and marriage.

Demi Schweers initially brushed off her multiple sclerosis symptoms and chalked them up to stress.

We were also in the final planning stages of our nearly 200-person wedding.

When I suddenly began to feel exhausted all the time, I chalked it up to stress.

When my right eye became dry and I started to see orbs, I bought eye drops.

In addition to sharing content about multiple sclerosis, Demi and Tom Schweers also talk about infer…

The doctor said my eye was perfectly healthy.

Suspecting it was neurological, she sent me to the ER for an MRI.

It appeared I had a lesion at my optic chiasm, where the nerves in the eyes connect.

Demi Schweers was diagnosed with relapsing-remitting multiple sclerosis in 2020.

Now concerned, I began Googling possible causes and stumbled on multiple sclerosis.

More tests confirmed I had several lesions, so they admitted me to the hospital.

Overnight, I lost all feeling in my right side and had trouble walking.

The hardest part was not having Tom by my side due to COVID restrictions.

Two months later, I was diagnosed withrelapsing-remitting MS,the most common form of the disease.

The date was Friday the 13th, which seemed apropos.

As far as diagnoses go, mine was relatively quick, since MS can go undetected for years.

As crazy as it may sound, I was relieved to put a name to everything happening.

When we took ourvows in sickness and in health we hadnt seen this coming.

He assured me he was.

She was born in 2023, and five months later, we found out I was pregnant again!

This time with a baby boy due this summer.

This isnt uncommon, though as studies show that changes in the body during pregnancyoften contribute to fewer relapses.

After my diagnosis and our experience with infertility, I began sharing more about our personal lives.

Two months aftermy diagnosis,we started a jointTikTokaccount.

But since wed already been vocal about MS and fertility on Instagram, the conversation just naturally carried over.

I used to work in sales, spending six hours a day in the car.

I quit in October 2021.

We enlisted an agent to help with brand partnerships.

Its taught me to be more present because I dont know what tomorrow will bring.

I could wake up and lose my vision again or be unable to walk.